Privacy Policy


Dementias Platform Australia (DPAU) is a data sharing platform for academic researchers.

The DPAU Data Portal website is hosted on a secure Amazon cloud server, located in an Australian data centre. The DPAU Data Portal website is administered by the Centre for Healthy Brain Ageing (CHeBA) at University of New South Wales (UNSW) Sydney, Australia.

DPAU is committed to protecting the privacy and security of your personal information. This notice describes how we collect and use your personal data submitted to us online, by email, on paper or face-to-face.


The Centre for Healthy Brain Ageing (CHeBA) at UNSW Sydney is the 'data controller' for the information that you provide to DPAU when you visit our website, attend our events or submit the application form. This means that we, as part of the UNSW Sydney, decide how to use it and are responsible for looking after it in accordance the Privacy and Personal Information Protection Act 1998 (NSW) ("the Act").


Access to your personal data within DPAU will be provided to those staff who need to view it as part of their work administering the website.


We may store the data we collect in hard copy or electronically. The data is stored on secure servers located in Australia. We may share your data with staff associated with Monash University, Contributing Research Studies (CRS) and DPAU Projects under certain circumstances. DPAU will not otherwise disclose your personal information without your consent unless otherwise authorised by law. DPAU may disclose personal information to a third party if the disclosure is necessary to prevent or lessen a serious and imminent threat to the life or health of you or another person.


We will only retain your data for as long as we need it to fulfil our purposes, including any relating to legal, accounting, or reporting requirements.


Under certain circumstances, you have the right to:
  • Request access to your data (commonly known as a "subject access request"). This enables you to receive a copy of your data and to check that we are lawfully processing it.
  • Request correction of your data. This enables you to ask us to correct any incomplete or inaccurate information we hold about you.
  • Request erasure of your data. This enables you to ask us to delete or remove your data under certain circumstances, for example, if you consider that there is no good reason for us continuing to process it. You also have the right to ask us to delete or remove your data where you have exercised your right to object to processing (see below).
  • Object to processing of your data where we are relying on our legitimate interests (or those of a third party) and there is something about your particular situation which makes you want to object to processing on this ground.
  • Request the restriction of processing of your data. This enables you to ask us to suspend the processing of your data, for example if you want us to establish its accuracy or the reason for processing it.
  • Request the transfer of your data to another party.

Depending on the circumstances and the nature of your request it may not be possible for us to do what you have asked, for example, where there is a statutory or contractual requirement for us to process your data and it would not be possible to fulfil our legal obligations if we were to stop. Further information on your rights is available from the Privacy and Personal Information Protection Act 1998 (NSW) ("the Act").

If you want to exercise any of the rights described above, including any access and amendment, requests should be directed to DPAU via email:

If you have a complaint about your privacy that you feel is not being addressed adequately by DPAU, you can direct it to the UNSW Privacy Officer via email:

Complaints and concerns about the ethical conduct of DPAU can be directed to UNSW Sydney Human Ethics Team via email:, citing Project ID HC230290.